9 February 2003:  Beware of Bean

Ethan was discharged from the hospital this afternoon.  The BAD infusion had a different effect on Ethan this time.  The Benadryl and Ativan wiped him out and he was taking several long naps each day. 

When Ethan wasn’t sleeping, the Decadron seemed to have a mood-altering effect on him, which has been torturous for the rest of us.  Friday wasn’t so bad, but today and Saturday more than made up for it.  I think the low point came earlier this afternoon when he realized that he missed both Thomas' and Courtney's birthday parties this weekend...  Whew!  He’s very fragile both physically and emotionally, so I’m hoping tomorrow will be better once some of these meds work their way out of his system.  I have to keep reminding myself that I’d rather endure several bad days of vicious mood swings then to see him so sick.  It’s been very difficult and very tiring though, and I think that I may be on the verge of my own mood swing… 

Please, if any of you cross our paths over the next few days – BE GENTLE! 

Kim. 

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